Scientific advisory board

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COORDINATORS OF BMBF-FUNDED NETWORKS ON RARE DISEASES

Autoinflammatory Disorders in Children and Adolescents (AID-NET )
Prof. Dr. Johannes Roth, University Hospital Münster

Rare Pulmonary Diseases (CARPuD 2)
Prof. Dr. Ulrich Martin, Hannover Medical School

Craniofacial Disorders (FACE)
Prof. Dr. Bernhard Zabel, University Hospital Freiburg

Genetic modification of the CFTR-Gene for Cystic Fibrosis (GALENUS)
Prof. Dr. Joseph Rosenecker, University Hospital Munich

Systemic Amyloid light-Chain (AL) Amyloidosis (GERAMY)
PD Dr. Stefan Schönland, University Hospital Heidelberg

Hereditary Retinal Disorders (HOPE)
Prof. Dr. Bernd Wissinger, University Hospital Tübingen

Neurological and ophthalmological Ion Channel Disorders (IonNeurONet)
Prof. Dr. med. Holger Lerche, University Hospital Tübingen

Mitochondrial Diseases (mitoNET )
Prof. Dr. Thomas Klopstock, University Hospital Munich

Motoneuron Diseases (MNDnet)
Prof. Dr. Albert Ludolph, University Hospital Ulm

Imprinting Diseases (Imprinting)
Prof. Dr. Bernhard Horsthemke, University Hospital Essen

Primary immundeficiency disorders (PID-NET )
Prof. Dr. Christoph Klein, University Hospital Munich

Translational Network for Sarcoma (TranSaRNet)
Prof. Dr. Heribert Jürgens, University Hospital Münster

With involvement of formerly BMBF-funded Networks:

GOLDnet German Network for Diffuse Parenchymal Lung Diseases, Prof. Dr. Andreas Günther, University Hospital Gießen
CURE-Net Network for Congenital Uro-Rectal Malformations, Dr. Ekkehart Jenetzky, University Hospital Heidelberg / PD Dr. Heiko Reutter University Hospital Bonn
EB-Net Epidermolysis bullosa, Prof. Dr. Leena Bruckner-Tudermann, University Hospital Freiburg
CBMF Congenital Bone Marrow Failure Syndroms, PD Dr. Cornelia Zeidler, University Hospital Hannover
MD-NET Network for Muscular Dystrophy, Prof. Dr. Maggie Walter, University Hospital Munich
NIRK Network for Ichthyosis, Prof. Dr. Heiko Traupe / Prof. Dr. Vinzenz Oji, University Hospital Münster

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